Only a Chapter in My Book: Nipple-Sparing Double Mastectomy with Implants 

After I have kids, I’ll replace my implants with a DIEP flap reconstruction.

• Procedure: nipple-sparing double mastectomy, tissue expanders, saline implants
• Reconstruction immediately postmastectomy: No, 4 months later.
• Years of procedures: 2022 to 2023
• Age: 35 years old
• Race or ethnicity: Black/African American

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My diagnosis

In March 2022, my fiancé and I were preparing to start our first round of in vitro fertilization (IVF). I come from a long line of breast cancer warriors, and due to genetic mutations, TP53 and BRIP1, I was considered high risk for breast cancer.

Before starting IVF, I made an appointment for my first mammogram at 35 years old. After that, it was a whirlwind of follow-up appointments, ultrasounds, and biopsies that led to my diagnosis of stage 0 cancer within a few weeks.

Choosing a mastectomy and implants

At the end of April, I had a consultation with a breast surgeon to discuss surgical options. I chose a bilateral mastectomy because I wanted to eliminate my high risk and reduce the risk of recurrence. I also wanted to begin IVF as soon as possible for the best outcome.

I chose breast reconstruction with saline implants as a temporary solution. After I finish having kids, my end goal is to undergo DIEP flap surgery.

My surgery experience

I cherished the shape and size of my breasts presurgery. I prepared as much as I could by making sure I had the resources I needed mentally, physically, and emotionally.

My fiancé and family supported me during the recovery process, and I started therapy to help me recover mentally. But it’s been a marathon.

I had a mastectomy with tissue expanders placed in my chest at the end of May. In less than a month, I had skin necrosis in both breasts — skin necrosis is when the skin doesn’t get enough blood flow to heal properly. I had to have some skin surgically removed, which I’m not happy about.

In October 2022, I had surgery to replace the tissue expanders with implants. At first, it was hard to look at my body.

I don’t love the overall look and feel of my implants. My breasts feel like foreign objects. I have no control over their appearance or temperature. One of my implants also came loose and slid under my armpit. I’m planning to have revision surgery to fix it.

It requires physical therapy, and I’m staying active to prevent drooping and stretch marks. Working on my pectoral muscles has been a significant part of my journey.

As I look ahead, I know there are several surgeries awaiting me after we achieve success with IVF, like DIEP flap reconstruction.

Learning to embrace and love my new “foobies” has been a journey of self-discovery and acceptance. Every step of the way has been filled with challenges and emotions, but I continue to move forward with strength and hope for the future.

Why sharing is important to me

I’m sharing my images and story because I want to help others know what to expect, though everyone’s journey is different.

Since my diagnosis, I’ve become more vocal about what I want and what I’ll accept. I’ve learned how to advocate for my health, and I want to be a resource for future survivors and caregivers who look like me.

What I want others to know

I wish I’d known what questions to ask, like “Is it possible to get sensation back after the breast tissue removal?” “Does my doctor have experience with women of color?”

Ask all the questions during your appointments, and bring a friend or family member who’s comfortable asking questions and who can talk with your medical team on your behalf.

Getting diagnosed with breast cancer is only a chapter in your book. It’s not the whole story. Don’t let it define you, and don’t focus on who you were before. I encourage you to find and embrace your new normal.